October Awareness

by | Oct 30, 2021 | 3 comments

For many years, we have known that October is Breast Cancer Awareness month. As I was doing some research for this post I found some unknown to me facts. In 1991 Charlotte Haley , a grassroots activist and cancer survivor was trying to raise awareness about the lack of federal funding for cancer prevention. Ms. Haley sent out thousands of cards with a peach ribbon attached resulting in her message reaching many people. However, It would be Susan G Komen who would be the first activist to incorporate pink in her campaign through her Breast Cancer Research Foundation. She did this by having pink visors handed to runners in her Race for the Cure. The color pink is thought to be calming, stress relieving, quieting, and life-affirming. Thus, pink became the color for breast cancer awareness month and ribbons.

I have a dear embroidery and quilting friend who is has completed her chemo and radiation for breast cancer and is now receiving maintenance chemo every few weeks. This friend does not like the color pink very much and I wanted to make something celebrating her being a survivor. When I first was selected for the Crafter’s Edge Design Team earlier this year, I chose these two dies specifically for this month and for her.

As I stated earlier, my friend does not really like pink, BUT she loves Alabama Crimson Tide football!! So, in celebration of her being a survivor, I used these dies to make her a cross body bag that she can use when she just needs to carry a few things and not her entire purse! She hasn’t seen this until now. Hopefully we can make our guild meeting in November and I can give it to her then. If not, we will just have to meet for lunch one day soon! So here it is in those Bama colors and fabrics!! I just need to add the straps!

And you still have today and tomorrow to get 20% off everything on the Crafter’s Edge website! No coupon required. You will see the discount in the cart.

Another cause near and dear to my heart. You may not be familiar with chronic recurrent multifocal osteomyelitis or CRMO for short. This is a little know inflammatory bone disease which occurs primarily in children and adolescents, though more adults are being diagnosed. It comes and goes and can migrate from joint to joint, causing swelling and pain. This disease is rare and affects as few as one in one million, though the number may be higher due to misdiagnosis. Unfortunately, my sweet granddaughter is a part of that 1:100,000,000. Her rheumatologist told her she may be the only child in Alabama currently diagnosed with CRMO. She has had symptoms of migratory swelling in her knees and ankles for several years, and our daughter has taken her to numerous doctors and finally a pediatric rheumatologist at The Children’s Hospital of Alabama diagnosed her with CRMO. She was first treated for a month with high dose Naproxyn 1000 mg twice a day, a nonsteroidal anti-inflammatory drug (NSAID) which helped a lot. At that point she was told to just take the NSAID when she had a flare. She just had to have another MRI, because she is having more flares, and while it looked better, she still is not in remission and the doctor wants to try stronger drugs with more side effects. They opted to go back on the NSAID twice a day before moving onto more toxic meds. She handles her diagnosis like a trooper despite the pain and swelling at times and just keeps going with swim team and her competition dance team. The doctor doesn’t want her to quit the activities she enjoys so much. But sometimes she has to dial it back a little when the flares occur. Since October is also the awareness month for CRMO I wanted to let my readers know about it and to also ask for those of you who pray to remember Madelyn and pray for her healing with us.

Ribbons for Madelyn

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3 Comments

  1. rl2b2017

    Hi Brenda! What a wonderful post. We have often walked in the Susan B Komen fundraiser near us, and lost Sue’s sister to breast cancer that metabolized after a 10 year battle. We see a LOT of her in our sweet Addison. Your thoughtfulness in the gifts for your friend are just wonderful – the ribbon and hope are pure regardless of the absence of pink. And Madelyn!! I have a good friend who suffers from CRMO, oddly enough. She is 68 and can offer Madelyn a lot of hope – she’s made to that age!! And she has found that it seems that her diet MAY trigger a flare up. She did something dramatic, that I’m not recommending, but she removed everything from her diet. Just the basics – plain chicken, rice – all whole foods without processing. Then she slowly added back one thing at a time. Odd things, like ketchup or mustard, once a week. She discovered that her body flares with sugar or any carb because they turn to sugar. No gluten but she can use rice flour or other substitutes. I hope that Madelyn is able to stay strong and keep her spirits up. She has a strong support system on her side – more than she may ever realize because I’m pulling and praying for her. May CRMO be illuminated and eliminated in her lifetime. {{Hugs}} a bunch. ~smile~ Roseanne

    Reply
  2. Daryl

    Your friend will love the bag and find it useful I am sure. I am sorry to hear your granddaughter has that rare condition. I hope she does feel better and that there is something found to make it easier to cope with. Hugs to you all!

    Reply
  3. Gail Beam

    Hi Brenda, The Bama bag that you made for your friend is just awesome.

    We will certainly keep Madelyn in our prayers and hope that they find a cure for CRMO for her in the very near future.

    I tried to sign up for your IO Group that is at the bottom of this newsletter , but the url does not work to sign up.
    Have a great week,

    Reply

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